Originally Posted by Heart_of_Dixie
This sounds eerily familiar. My wife has a disorder called postural orthostatic tachycardia syndrome (p.o.t.s) and the symptoms are almost identical in some respects. You mentioned blood pressure problems, is it low by any chance? She has low b.p. and her heart rate rises at least 30 beats per minute upon standing causing her to either pass out or come close. She is being seen at Vanderbilt but doctors are still unsure of what causes it. I wonder if there is any correlation?
P.O.T.S. is why I had problems passing out. My blood vessels weren't constricting right and not enough blood was going to my head while standing. To me (and I'm no Doc.) p.o.t.s. is a symptom of something else. In the article linked below it says 1/3 to 1/2 of people with p.o.t.s. have digestive problems. I'm guessing the digestive problem is why they have p.o.t.s., and p.o.t.s. is just a symptom of whatever is causing the digestive problems? That's the case with me. For those without digestive problems I'm guessing something else like bacteria. I had an aunt that started passing out and it turned out to be Lyme.
And oddly I have three co workers (two of them are close friends) that have all had or are having similar problems passing out. One was having gail bladder problems and he got better after his was removed. One was having sever digestive problems and it cleared up after about a year (except for an occasional spell). It just started for the third and his doc says its because of an over active colon which is irritable bowel syndrome. They haven't figured out what is causing his IBS yet.
I'm not sure what they have checked your wife for but I would suggest she get checked for Lyme and food allergies including celiac (gluten) and meat. She might also want to try a week without gluten and then a week without red meat just see if it helps?
I'm also not sure what meds she's tried but Atenolol (beta blocker) was amazing for me. It's normally for high blood pressure but it is also used to treat syncope (passing out). It helps keep everything balanced and slows the heart down. Ironically I had to take a very mild does because my heart rate was down to 50 BPM as a result of starving when my gail bladder quit working. Fortunately that mild does made a world of difference. I still take 12.5mg a day, but I'm hoping I can stop that soon?
I sincerely hope your wife gets better. http://www.dinet.org/pots_an_overview.htm